Dementia with Lewy Bodies is caused by the buildup of tiny protein deposits (Lewy Bodies) in the brain. These deposits disrupt normal brain functioning and interfere with important chemical messengers, such as dopamine and acetylcholine, leading to cognitive, motor, and behavioral symptoms.
Key Characteristics
Fluctuating Abilities:
Cognitive abilities and alertness may change daily or even hourly.
Visual Hallucinations:
Seeing things that are not there is a hallmark symptom and often occurs early in the disease.
Movement Challenges:
Shuffling gait and difficulties with balance
Very slow movements and muscle stiffness
Fainting and Falls:
Frequent fainting spells or unsteadiness
Sleep Disturbances:
Nightmares or vivid dreams that can lead to physical actions during sleep (REM sleep behavior disorder)
Problems with insomnia or fragmented sleep
Spatial Disorientation:
Difficulty judging distances, leading to problems navigating familiar spaces
Sensitivity to Medications:
People with DLB often respond poorly to antipsychotic medications, which may worsen symptoms like rigidity and confusion.
Key Takeaway for Caregivers
Monitor Fluctuations: Be prepared for rapid changes in alertness and abilities. Adjust care routines to match the individual's daily needs.
Ensure Safety: Address mobility issues and prevent falls by creating a safe environment with support for walking and standing.
Support Sleep Health: Implement calming nighttime routines and monitor for disturbances caused by vivid dreams or nightmares.
Avoid Certain Medications: Consult with a doctor before administering antipsychotic medications, as they can be harmful for individuals with DLB.
Stay Patient: Visual hallucinations and confusion can be distressing for the individual. Offer reassurance and remain calm.
Understanding DLB helps caregivers provide specialized care to enhance the individual’s safety, comfort, and quality of life.
Key Characteristics
Fluctuating Abilities:
Cognitive abilities and alertness may change daily or even hourly.
Visual Hallucinations:
Seeing things that are not there is a hallmark symptom and often occurs early in the disease.
Movement Challenges:
Shuffling gait and difficulties with balance
Very slow movements and muscle stiffness
Loss of facial expression (sometimes referred to as a "mask-like" face)
Fainting and Falls:
Frequent fainting spells or unsteadiness
Sleep Disturbances:
Nightmares or vivid dreams that can lead to physical actions during sleep (REM sleep behavior disorder)
Problems with insomnia or fragmented sleep
Spatial Disorientation:
Difficulty judging distances, leading to problems navigating familiar spaces
Sensitivity to Medications:
People with DLB often respond poorly to antipsychotic medications, which may worsen symptoms like rigidity and confusion.
Key Takeaway for Caregivers
Monitor Fluctuations: Be prepared for rapid changes in alertness and abilities. Adjust care routines to match the individual's daily needs.
Ensure Safety: Address mobility issues and prevent falls by creating a safe environment with support for walking and standing.
Support Sleep Health: Implement calming nighttime routines and monitor for disturbances caused by vivid dreams or nightmares.
Avoid Certain Medications: Consult with a doctor before administering antipsychotic medications, as they can be harmful for individuals with DLB.
Stay Patient: Visual hallucinations and confusion can be distressing for the individual. Offer reassurance and remain calm.
Understanding DLB helps caregivers provide specialized care to enhance the individual’s safety, comfort, and quality of life.